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Jamie’s Story

Jamie is a 53 year-old-man with SMA. He has a lot of interests in life and is driven to learn and build things. He especially loves computers because they allow him to do the same things as everyone else.


Jojo’s Story

Jojo is a happy, third-grader who loves music and school. Despite being born at 33 weeks his mom had a seemingly normal pregnancy. Sometime after he was born he suffered a grade four brain bleed that resulted in an official diagnosis of spastic cerebral palsy at one year old.


Karen’s Story

In April, 2017, Karen was referred to a neurologist after experiencing unexplained weakness that was progressing. Nothing could have prepared her for the neurologist’s preliminary diagnosis of Amyotrophic Lateral Sclerosis (ALS).


Ian’s Story

Ian is a lover of the outdoors. He likes to spend as much time outside as possible enjoying nature, bird watching and experiencing the seasons change all around him. Ian’s life drastically changed in 2008 when he was in a bicycle crash that resulted in a spinal cord injury. At 26, Ian found himself paralyzed from the neck down and completely lost.

Evans Family

Evans Family’s Story

The Evans family has eight children, four with special needs. The parents, Melanie and Mike, have adopted three of their eight children.


Katelynne’s Story

Katelynne is happiest when she is outside breathing in the salty air from the Cape. She has a service dog named Jones who helps her to live independently.


Lillie’s Story

Lillie is a lover of water and bubbles. She was diagnosed with a rare genetic condition called DDX3X Syndrome.


Mario’s Story

Mario was born and raised in Memphis, Tennessee. At the age of fifteen, he suffered a spinal cord injury during a high school football game. This injury left him paralyzed from the neck down. Despite his injury, Mario has turned his situation into something positive and impactful.


Marley’s Story

Marley was diagnosed with spinal muscular atrophy (SMA) Type II at eighteen months old. While being in a chair can be frustrating at times, Marley values her powerchair and the mobility and independence it provides.


Carlee’s Story

Carlee was born in 2008 weighing nine pounds – her mom, Kelli, describes her first year as “typical.” “Carlee crawled, could stand some, but she didn’t walk and run like her brother had done,” said Kelli. “At around 15 months, I just knew something was wrong.”


Aydin’s Story

Aydin was born premature six weeks early as a result of a placenta eruption. Prior to birth, doctors determined that Aydin had a club foot and would need surgery once he was born to help straighten it. While the surgery went well, his parents noticed over time that he was delayed in meeting developmental milestones.


Matt’s Story

Paralyzed in a high school hockey game, the moment Matt crashed headfirst into the boards his life changed in a huge way. But his confidence never wavered. Matt's "Never Quit" attitude allowed him to finish high school, graduate from college, become a well respected motivational speaker and now, his most recent achievement, author of a book.